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Showing posts with the label chronic illness

Discharged finally!

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So my oncologist and the Floor doctor hesitated a bit but made the decision to discharge me yesterday afternoon. There was some hesitation because my potassium, magnesium and phosphorus were still lower than they'd like them to be. When I got to the hospital they were reading below the average low, now they are reading in the average low. This is after a week of them pushing it through on iv directly into the medaport in my chest for a week. Having diarrhea meant that whatever they gave me would go right through me. My chemotherapy medication was stopped because that was thought to be the reason for the diarrhea. Anti-diarrhea medication was given to stop the diarrhea but my body didn't respond until after a few days. Once the diarrhea was lessened then my body was able to absorb the potassium, magnesium and phosphorus that was being administered just at a slower rate. Days passed and my labwork showed that my readings would go up and then they would take a dip, then it would ...

Rough day

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Today was a rough day. My back pain was at an all time high today and I decided to still go to work. Yes, my surgery was a year ago and yes, I'm at a desk job now but I've also been on chemo this whole time. That in itself halts my body from healing every three weeks for an entire week. There has also been a temporary change to my pain medication. Two more days and I'm back on my normal medication. Any person who would have had the same surgery would be so much further along in their recovery. In case some of you are new to my blog let me fill you in and catch you up. I was in a car accident November 2015 and began to have upper back and neck pain about a week after. I went to see a doctor in December who said I had whip lash. He said I would heal and the pain would gradually go away. It actually got worse and he made me feel like I was being a baby because he saw nothing on the xray which included vertebrae C1 - C5. The typical area where whip lash would show any damage....

That time again already?

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I couldn't sleep well last night, I tossed and turned. A three letter question krept into my dreams and woke me. A few times today, out of nowhere, tears filled my eyes and an instant lump swelled in my throat because that same three letter word snuck up on me causing me to cry silent tears. Crying because I know I'll never have an answer. Crying because there is no answer. A few days before chemo my mind goes into overload and I mentally start counting down the days. I start to feel sad and depressed the closer I get thinking of what could of been, what is now and what could be in the future. My heart body and soul know I have chemo tomorrow. That three letter word haunts my dreams and taunts me when I'm awake. Looking at myself in the bathroom mirror, looking into my sad hurt eyes, looking at my bald head, looking up towards the heavens, tears streaming down my cheeks, silently screaming that single question. My brain understands that there will never be an answer, ev...

Can't help it.

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The week following chemo I'm such a blubbering mess. The sickness that engulfs my body is a constant reminder that I'm sick. That I've got a chronic disease to deal with for the rest of my life. That it's cancer I live with and It's  terminal. During this week that follows chemo, my emotions are all over the place. Sad, depressed, mad and if I'm being honest a bit jealous. Sad and depressed that I have to put my body through this just to stay alive. My quality of life in between sessions isn't all that. Yes I'm alive. Yes I'm living. Yes I'm working, getting out, spending time with my son, family, friends. Facetiming with my boyfriend, but doing all that at very low energy. Any time you see me doing anything it's because I'm forcing myself to use energy that I have little of. I'm so very mad because with this illness my body would much rather be sitting in a recliner resting, laying in bed sleeping, going through social media, watc...