Spinal Surgeon Appointment

Well, I spoke with Dr. Jude and he said I could start weaning off the neckbrace! Hallelujah! (or so I thought). I took off the neckbrace and sissy said, "look! no more double chin!" Lol That made me smile. She said she needed to borrow it to get rid of hers. I nervously touched my neck and it felt so weird. I know it might sound funny to you but I literally either have the hard plastic neckbrace on or the soft collar one on. Even in the shower I do a quick wash of my neck and the soft collar goes on and stays on till I switch back to the hard one.  I haven't been without a brace since my surgery on March 27th. So yeah, it felt weird to touch my neck. It was probably 15 minutes without it and I started getting the worst headache. Half my face, my head, neck and down to my shoulders. My head felt like a bowling ball and my neck was a noodle. I had to put the brace back on. I loosened the velcro just enough to give me some support. The next day I put on the soft collar and I haven't taken it off yet. I'm going on 3 days. I don't want to have a stiff neck. I want to have movement. I just don't want to get a migraine either.  I will make an effort to be without it 10 minutes at a time. Let's see how I do.
Also, when I touch the back of my neck I can feel the screws just under my skin. That feels weeeird! Can't wait for my sissy to feel it. She thinks I'm crazy cause I told her I can "feel" the hardware inside my neck and back. Now she can too.
#TeamSweetJean Fundraiser

Comments

Post a Comment

Popular posts from this blog

CT Results

Image
Well, it's not the news I wanted to hear. My cancer is no longer "stable" It has progressed in my lung and lymphnodes. My run with perjeta, herceptin and taxotere has come to an end. My oncologist is trying to get Tykerb and Xeloda approved by my insurance. Once approved I will no longer take my original medication through my mediport every 3 weeks but rather my new medication In pill form two weeks on and one week off. I'm worried how my body will react to stopping the medication I've been on for just over a year and starting something completely new. Will it be a shock to my body? I'm worried of the side effects of the new medications. Especially the sores in my mouth and the hand and foot syndrome which causes my palms and bottom of my feet to dry up and crack and bleed making it difficult to walk. Of course the usual side effects of diarrhea, vomiting and fatigue are attached to these drugs. I'll face any and all issues as I'm faced with them. I g...
Read more

I don't want chemo I NEED chemo

I NEVER POSTED THIS IN JANUARY 2018 So basically, with my new insurance I needed a prior authorization to get my bone strengthener infusion and my chemo pills. I got the prior authorization however I have to pay 4 thousand for one of my chemo pills and 5 thousand for the second one. Esther in the pharmacy called me with this news. She said she was able to get me a grant but it only covers the first medication and not the other. She didn't want to fill the one by itself because I take both medications together as they work better together. I told her I couldn't pay for the second. She said she would ask someone in the patient services department for help finding another grant. Gracie from patient services called me back a few hours later, 4 o'clock this past Friday. She said she couldn't find anything that I qualify for. Mostly because I'm working (part time 15hrs a week) so I'm making to much money. I was so angry because if I was at home not working I woul...
Read more

Aches, withdrawal & depression, Merry Christmas to me

Image
I've been in bed since Saturday night with a bad stomach bug. I missed Christmas and this makes me so sad. I heard the happy jolly festivities comencing in the rest of the house as I lay moaning and groaning in a bundle in the corner room trying to sleep it off on Christmas Eve. I heard the door creak open and I half awoke from a nap. I didn't realize my son was sitting on the edge of the bed by my side in the dark. The creak from the door opening was my mother checking in on me. I heard her step in and speak to my son. She said, "no, mijo don't cry, your mommas going to be ok" I was half asleep but I still felt that tinge in my heart as it ached for him as I hate making him sad. I drifted back to sleep as he layed down next to me. Although I was asleep I was a happy momma he was laying by my side. I heard my brothers check in on me as they whispered Merry Christmas to me each at separate times. My sister came in and offered to take me to the ER as she heard me ...
Read more